Dystonia Defined

This website has been designed by Jie Jin. It covers most aspects of dystonia, a movement disorder described below: For further infomation about this website call 819-776-6192. For addtional information call
613- 749-7401(Email: seaward.h@sympatico.ca) or 819-770-5296,
(Email: yvonbreton@videotron.ca)

We thankfully acknowledge definitions and other info from the DMRF main WebSite.

Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.

La dystonie est ?un syndrome neurologique de contractions involontaires, soutenues ou spasmodiques, causant la torsion ou des mouvements r¨¦p¨¦titifs ou des postures anormales. Ses sympt?mes les plus graves ont un impact profond sur la personne, la retenant en otage apr¨¨s l'avoir retir¨¦e de la soci¨¦t¨¦.? (American Medical Association, 1991)
Applez 819-770-5296 (Email: yvonbreton@videotron.ca).

If dystonia causes any type of impairment, it is because muscle contractions interfere with normal function. Features such as cognition, strength, and the senses, including vision and hearing are normal. While dystonia is not fatal, it is a chronic disorder and prognosis is difficult to predict.

It is the third most common movement disorder after Parkinson's Disease and Tremor, affecting more than 300,000 people in North America . Dystonia does not discriminate - affecting all races and ethnic groups.

See DMRF website for additional information.

Hi Everybody,

The DMRF is in the early stages of creating a new brochure about "Dystonia & Aging." The idea is to address issues that pertain to people with dystonia in their 50s, 60s, 70s, and beyond. I am doing an informal suvey and would be really grateful if you could write to me with your thoughts on any of the following questions:

1. How have your symptoms changed over the years?
2. How has your quality of life changed over the years?
3. How has your emotional reaction/acceptance of dystonia changed over the years?
4. Aside from dystonia, do you cope with other conditions or disorders that friends/family your age are not yet facing? If so, what?
5. What have you learned about yourself and about dystonia over the years?

For those of you who respond, I may follow up with you individually if that's ok.

Thanks in advance for your help. Feel free to contact me with any questions.

Best wishes,
Jessica Feeley
Editor & Special Projects Coordinator
Dystonia Medical Research Foundation
jfeeley@dystonia-foundation.org


SOURCE : DMRF


Newsletters
: Apr 2005 Edition, Aug 2004 Edition, Dec 2004 Edition
* Read PDF file, please using Adobe Reader.
http://pages.videotron.com/dystonie/