U.S. HQ Chicago
While there are dystonia organizations throughout the world, in North America the main organization coordinating dystonia is the Dystonia Medical Research Foundation situated in Chicago with Support Groups in most U.S. states. 312-755-0198, website: www.dystonia-foundation.org
Canadian HQ Toronto
The Canadian HQ for dystonia is located in Toronto and coordinates the efforts of support Groups throughout Canada. 416-488-6974, Email: firstname.lastname@example.org
Provincial Support Organization
Most, but not all provinces have support groups who help people cope with dystonia. Some provinces have several support groups that all report to DMRF Toronto.
Dystonia Support Group of Ottawa/Gatineau
The support Group in Ottawa/Gatineau operates out of the Carlington Community Health Centre, 900 Merivale Road , the fourth Tuesday of each month. This organization provides support for dystonia sufferers in Western Quebec and Eastern Ontario. 613-749-7401,